In recent months, the world has been privy to the personal and emotional journey of Hollywood icon Bruce Willis as he grapples with frontotemporal dementia (FTD). The news of his diagnosis, which was initially revealed as aphasia last March, has been met with an outpouring of support from fans and colleagues alike.
Emma Heming Willis, Bruce's wife since 2009, has been at the forefront, sharing insights into their family's experience. In a heartfelt post on Instagram, she shared a quote from Dementia Care Specialist Teepa Snow, stating, "Dementia doesn't rob someone of their dignity, it is our reaction to them that does." Emma's agreement with this sentiment underscores the family's commitment to supporting Bruce with love and understanding.
The diagnosis has been described by Emma as both a "blessing and a curse." While the clarity of understanding what Bruce is going through offers some solace, the reality of the disease's progression is undeniably painful. Speaking candidly about the challenges, she noted, "It's hard on the person diagnosed. It's also hard on the family." This sentiment was echoed by Glenn Gordon Caron, the creator of the late-1980s ABC series Moonlighting, in which Willis starred. Caron highlighted the stark contrast between the vibrant, life-loving Bruce Willis he knew and the man now navigating the world of FTD. He poignantly remarked, "He now sees life through a screen door."
Caron's recent efforts have brought Moonlighting to Hulu, allowing a new generation to appreciate Willis's groundbreaking performance alongside Cybill Shepherd. This move was particularly significant for Willis, who, despite his communication challenges, expressed enthusiasm about the show's revival. Caron shared, "I know he's really happy that the show is going to be available for people, even though he can't tell me that."
The disease's impact on Willis's communication abilities has been profound. Caron revealed that the actor is "not totally verbal" and no longer engages in reading, a pastime he once cherished. Yet, the essence of Bruce Willis remains. "When you're with him you know that he's Bruce and you're grateful that he's there, but the joie de vivre is gone," Caron lamented.
Emma Heming Willis's recent conversation with Today shed light on the family's approach to Bruce's condition. Emphasizing the importance of focusing on the positive, she said, "It's just really important for me to look up from the grief and the sadness so that I can see what is happening around us. Bruce would really want us to be in the joy of what is."
